Jordan Prins

In process.

Health

Living with ME / CFS

Health

I’ve been sick with Myalgic Encephalomyelitis (ME/CFS) since 2001. Myalgic (muscle pain) Encephalomyelitis (inflammation of the brain and spinal cord) was commonly called Chronic Fatigue Syndrome. I find the name (CFS) greatly under-represents what this illness truly is. Calling it Chronic Fatigue makes it incredibly easy to dismiss and minimize.

Living with ME/CFS since 2001, I have learned a lot about myself and this illness. If you’re wondering how to interact with me, I want to be believed and trusted, and for others to respect the boundaries I need. I did not write this to garner pity, unsolicited medical advice (nobody wants this!), or to be treated like I don’t understand my own illness. I am open to questions and conversation (no MLM’s or “essential oils” please).

Explaining to people what this illness looks like can be difficult and draining, so I rarely dive deep in my explanations. But for multiple reasons I felt like now is the time to share in my experience.

[Read more…] about Living with ME / CFS

Covid: my complete story.

Health

I think it might be time to tell my whole covid story (as of today).

If you haven’t read the initial post, you can catch up here.

To sum up, Paul and I had covid in March. We contracted it before lockdown even started here in France, and it was the worst 7 weeks I’ve lived through in recent history. These next details are more than we’ve told almost anyone, as we couldn’t emotionally handle having this conversation with anyone outside the two of us, and it’s still draining to have to retell over and over, so here we go.

[Read more…] about Covid: my complete story.